I've got my appointment at UCSF on December 11, finally... Seems like it has been years since I was diagnosed with this MM. It really has only been just over one month. Jenni and I have made plans to go to San Francisco the night before, stay at a hotel and then the next day do our Christmas shopping, or whatever is left to do. Jenni is a major planner type person and buys stuff a little at a time starting in November. Jenni's been going to all my Dr. appointments. I kinda feel the reverse of when she was having our 2 kids. I wanted to go to each and every Dr. appointment with her. I wish she could come to my appts. for 9 months and then we could be done!!! It is nice having her there.
I've focused on the exercise thing really hard. Building those bones for when I get farther along with the cancer. I'm tracking my bike riding and I do Yoga on my "off" riding days. Jenni is getting me the Biggest Loser Boot Camp DVD so I can mix it up some. I'm feeling better than I have in a long time. That brings me back to where I am with the MM. It doesn't feel real! I know my numbers on the paper, I know what the Dr. said, I know that they wouldn't bother a MM specialist at UCSF with out it being real, but that being said.. shouldn't I "feel" something? No, my brain understands that I can have this and at this point have no symptoms. But my heart just wants it all to be a mistake. Don't get me wrong, I'm not depressed, not in denial, not scared... it is just a strange feeling to know your sick and feel this GOOD! I'll take this feeling good as long as God lets me.
I'll know more, I'm sure, after I get back on the 12. I'll blog on Friday night Dec. 11 what I have learned.
My MM friend Karyn is fighting hard and along with fighting it she has a major move to Texas soon. Keep her in your prayers. She is doing a good job working on the side effects of treatment. I hope I can follow her lead when the time comes.
That's about all for right now. I'l keep blogging as things happen etc..
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8 years ago
Steven -
ReplyDeleteI sent you an email. My blog is at www.nvdmyeloma.blogspot.com and I can tell you, management is one option but this is also a CURABLE CANCER for the majority of newly diagnosed patients.
I was diagnosed a year ago, and have been through a lot of nasty treatment, but I am back at work, life is more or less back to normal, and statistically based on data going back twenty years through numerous studies with hundreds and hundreds of patients tracked over that time, I currently have about a 85% expectation of being cured of this disease.
Mine is not the only path, but it has worked for me and I would urge you to investigate it if only to learn of alternatives. You can also email me at artisannvandyk at earthlink.net if you'd like my assistance.
Good luck and God bless!
Best,
Nick van Dyk