Stable

The visit to UCSF is over and all my numbers are good. The cancer hasn't started to run crazy yet so that is good. The only issue is my peripheral neuropathy. Dr. Martin had a lot of questions about that. Because I'm smoldering I shouldn't have any peripheral neuropathy. Well I do, and I went over it and that was that. Until last night at about 6:30 Dr. Martin called me at home to go over it again. I think the basic feeling is that the peripheral neuropathy isn't myeloma related. He is going to have my local oncologist refer me to a neurological specialist to run some tests.

One thing that is new to me is having so many doctors. I have spent my whole life just working with one, my GP. Yes, there was the occasional referral to get something specific done, but it was go there, get it done and move on. Now I have 3 Dr's that I see fairly regular. I just can't see adding another. Plus, they all want time lines on when it started, and that gets very confusing because the MM diagnosis and all that happened after that. I just get things mixed up, forget important parts.. well you know the story.

The cost thing set aside, I really don't know which way to turn. If, it isn't the myeloma then I wonder how important it is to really figure out what is causing it. I'm fairly well controlled on the medication my GP has me on. I can live and exercise almost normally. If it is the myeloma then I'm not sure a referral will help.

So, I guess I will go to my local oncologist the end of the month and ask some very direct questions about this. I hope that this gets settled quickly and finally.

The body is sick, but thanks to Jesus the soul is alive and well...