BLOGGER TEMPLATES AND TWITTER BACKGROUNDS »

Wednesday, March 31, 2010

Out of my comfort zone

I'm trying something new... Something I have never done before....

I'm setting up a fund raiser through the MMRF.  It is a run that is already scheduled for June 12th in San Francisco.  http://sanfrancisco.giants.mlb.com/sf/giant_race/index.jsp


I have set up a team of 5 runners/walkers so far and I even have a couple of donations!  It is easy so far but the BIG fund raising hasn't started yet.  I'm working just as hard to see if I can get additional people to run/walk and get donations!  I created a fund raising page with the MMRF.  They take care of the $$ donated so I won't have to track and bank a bunch of cash and checks!  That's good news as I'm always unsure about people who are just asking for cash.  I wonder if that cash really gets to the cause.  This way it is directly through the foundation and my donors can be sure of where their $$ are going.

Here is my donation page:  http://www.active.com/donate/2010RunOwnRace/Stevenritter

I really hope this works well and my team and I can collect some serious $$ to fight this cancer.

I'll keep the blog updated on our progress.

The body is sick, but thanks to Jesus the soul is alive and well...

Monday, March 29, 2010

I guess I'm guilty of being dog crazy...

Jenni and I planned a nice trip to Tahoe to watch the grandchildren while my daughter & her husband did some business stuff. We also planned a day just for us. It was a great weekend filled with us, kids and fun.

One problem was what to do with our new 4 month old puppy. She is crate trained and doing really well and we were letting her be a puppy before I started doing formal training. We have never had to board our dogs before because of our previous situations. Kids at home or just having dogs old enough to take care of themselves, with a little help from family. We had left Lucy, our puppy, with her mom last time. However, Lucy is growing fast and is full of all the energy that a Brittney is known for. She has become just too much for her mom to handle.


We got a referral from a trusted friend about a family that did dog boarding close to our house. Now this friend has had dogs for years and we know them to be loving, caring people who I would leave Lucy with in a second! However, again Lucy is a puppy and a handful, and they are also getting use to a new dog in their family.

I called and spoke to the boarder and he seemed very nice. We went over Lucy, her being a puppy, me holding off on formal training etc... He seemed like a good fit and affordable. I made the appointment.

Upon getting there I was taken back by where they were going to keep Lucy at night. It was 2 rows of large dog carriers, the kind you transport your dog to the vet in. However, I told myself it was only at night and Lucy was small. The lady seemed a little strange and I got a uncomfortable feeling. We had to leave that day so I had few options. I went over Lucy with her and she put Lucy in the play yard.

About 1/2 hour before we left she called me. She said that Lucy's ears were really dirty and she would like permission to clean them. I said OK. She said she was surprised that she didn't have an infection. That surprised me because I had Lucy into my vet just a few days before. They always do the same thing each time. They pull her ears back and look/smell them, look in her mouth, press on her tummy ect.. Then they take care of whatever I have taken her in for. I was surprised that they didn't say anything. No problem having her clean Lucy's ears... wrong...

She then said that Lucy chased her cat. I told them Lucy chased cats. She is a bird dog. She chases them and when she gets close she just points at them.. That's what pointer's do... She doesn't want to catch it just get close and point. She said to correct it she used a pinch collar and the problem stopped. Remember it was 1/2 hour before we left and I didn't know what a pinch collar was. I asked if other than that, if Lucy was OK. She said she was.

On to the vacation....

On Sunday Jenni called and asked how late we could come get Lucy. She said 6:00pm no later. If we were later Lucy would have to spend another night. She then said that she forgot to tell me that the ear cleaning was an additional $15.00! Jenni got off the phone and said she wanted her dog back NOW! She also didn't have a good feeling about her being there.

I agreed and we headed home as fast as we could and not get a ticket. We got there with 20 min. to spare and took our puppy home. When we got home Lucy, as excited as she was headed right for her food. She ate and ate and ate. When she was done I checked her ears. They were clean except a cut where she nicked her ear trimming the hair.. Now I'm getting mad. I then looked up what a pinch collar was. 
 They used this thing on my puppy!  I looked it up and all the good trainers said you never use one of these things on a puppy!  They should only be used by a trained professional and only to change dangerous behavior like running into the street or fighting!  This boarder used one on my puppy without my permission!

Well I think you can guess I'm never going to take my puppy back there again.  These people are nuts.

I take a lot of pride in having the best trained dog in the block.  I have never had to resort to these types of training tools.  I think that if you use love, caring and a positive experience a dog will want to do what you are asking of it.  Training should always be fun and a positive experience for the dog.  It has always worked for me! And yes...I think I have always had the best trained dog on the block.

I'm really sad that Lucy had to go there.  It is my fault because I didn't do my homework and insure that she was in a safe loving environment.  Now I will take some time and go find a boarder that will fit Lucy's and my needs... It is only the right thing to do!

The body is sick, but thanks to Jesus the soul is alive and well...

Tuesday, March 23, 2010

A learning experience...

I made my last blog and then modified it and sent it off to some TV, News Paper and that type of places. I thought it was a different take on all this Health care stuff. I got a call from my local TV station asking me to do an interview on the subject...

I agreed and I made a promise to myself that I would just keep to the facts! No opinions, positive or negative, on the pros or cons of health care. Just my concerns about what has happened to me concerning government health care, my being turn down and what that holds for my future.

I knew there was a risk doing this. I have heard horror stories about people doing interviews that came out 180 degrees different than what they expected. I told myself that if I kept to the truth, didn't overstate what has happened and kept it positive, I should be OK... I was WRONG!!!!!

A very nice reporter came to my house. She asked me questions for about 1/2 hour. I explained what I went through and the outcome. I also explained Jenni's and our discussion about our finances and further treatment options. I also made the point that I was basing all this on my situation as it stands right now. We then went into the video part of the interview. She asked me basically the same questions and I gave the same answers. We then went around the house doing "set up shots". Later in the day she told me the interview would be on at 6:30pm.

I watched it and was shocked & horrified ! I was embarrassed and I really just wanted to crawl in a hole! It was NOTHING about why I agreed to do the interview! I came across as a whining, feel sorry for me person who is just waiting for government health care to solve my problems! They did that by basically running the "set up shots" and doing voice overs!

I emailed all my friends and family and apologized for what they saw and I emailed the reporter with my disappointment. The good news is that she agreed to pull my story from airing again. It could have aired at 11:00pm and on the morning show. I have my DVR set to record those times so we will see if she was being truthful with me.

I guess this is a lesson learned. Don't trust the media to report an honest story! I will never look at stories in the news in the same light again. It is really true, when you give an interview you don't know how it will be spun.

I think it is really sad that America has come to this point. That nobody can question the political correctness of a government program. Even if to just ask some simple questions. The story is killed, the experience is behind me and I'll keep smiling and supporting all my great new MM friends...

The body is sick, but thanks to Jesus the soul is alive and well...

Monday, March 22, 2010

Heath Care Reform

Jenni and I are scared.

They did it. They passed the health bill. So now what? I'm an unemployed prior Marine who has cancer and was flat turned down for VA Benefits (government health care). Now they have made it so my personal health care benefit premiums will sky rocket to the unaffordable level.

My assets and savings can only go so far. I don't see myself using them all up to fight this cancer and leaving Jenni without any reserve for her senior years. She asked me this morning "what can I do to help you now?" I had to tell her I didn't know. Her eyes teared up and so did mine. How can you tell a wife that we just have no options left.

One thing I have learned is this is an expensive cancer to fight. My savings would be gone in a matter of weeks/months when I start needing treatment. We would have to use it all, sell the house etc. I just can't/won't do that to Jenni! I have loved and cared for her too long! It cost me about now $3500.00 per year just to keep an eye on my cancer. That doesn't include any treatment. It can cost over $8000.00 per month for drug treatment, not including hospital or clinic costs!

They say that some Americans can expect Government benefits is 4 or 5 years..but only some of us... I've already been turned down for VA. They were very nice, they nicely showed me the door. Jenni will have to quit her job and we will have to sell our home to even come close to getting the VA to provide benefits. So what will we do until the new benefits kick in?

I will continue to do the things I've been doing. I will look for employment, I'll take my daily pills, eat right and exercise, and yes...pray..

I guess the only thing I can do now is tell my story to as many people as will listen until next November and maybe get a representative who will really care about his/her constituents.

This is also the last political post I will put in my blog. I understand that there are other M/M patients out there with other points of view. I hope this Health bill works out for them better than it will for Jenni and I. I don't want to make my blog uncomfortable for them to read. I pray for all of them daily to beat this cancer.

Jesus never promised us a long life here on earth. He only promised that he would be there for us when we need him. Like my pastor said "Pit happens"... I'm just glad that Jesus is here with us in this pit. I'll be fine... Now back to smiling and getting the best out of the life I have left!!!

What a sad day for America. :-(

The body is sick, but thanks to Jesus the soul is alive and well...

Tuesday, March 16, 2010

Life is Good

I think God is up in heaven just laughing at me....Yes, I think he has a sense of humor.

Last blog I was down about the savings $$$ just slipping away. I was really scared to do my taxes because of the unemployment etc. Well; we got a good refund back... The Lord once again is taking care of the Ritter clan! I'm glad he doesn't do things based on my limited faith...

The weather is turning and getting nice up here in Northern Cal. It is bumping up against 80 degrees this week. That has given me a good window to get back on the bicycle. That always helps my mood as I have a lot of alone time to think. It also makes my mood good because I'm doing something other than worrying about the stuff in my life. So I get a double dose of good mood and that's a good thing.

The puppy is growing like an unwanted weed! She is almost 20 lbs! What a hand full but I'm also really enjoying her. She is getting old enough to start some very basic training. She does great, still a puppy, but she is getting the basics down.

Really nothing new on the SMM front. I'm just waiting to go do my next blood test. That will happen April 1st. Staying on my vitamins and calcium. My cold is now gone :-)!!!

That's about all.. life is good at this point.

The body is sick, but thanks to Jesus the soul is alive and well...

Monday, March 8, 2010

Health care costs

Kind of a sad day today. I got ANOTHER bill from UCSF... They want another $700.00! Now don't get me wrong, they gave me great care and attention and I trust them. However on unemployment it is eating my savings alive! I consider myself blessed that we were able to save when I was working. I have the $$ for now.

I applied for Government run health care, VA benefits, they were also very nice... they nicely showed me the door. No help there. I have to be homeless and on the street for another full year before they will even consider me for health care. Plus Jenni works and because of that I still don't think I would qualify. Maybe I need to divorce her and then just live in sin...Just kidding Sweetheart!

So some decisions need to be made. I'm smoldering and at this point, not needing any treatment. The quarterly blood tests are all I need until next December, very affordable. They want me to do a bone marrow biopsy once each year with bone scans. My M-Spike is 1.9 right now. If my M-Spike stays below 3.0 I think I will forgo the biopsy, very high cost procedure. I can call Dr. Martin and get the whole body scan prescription and re-new the blood tests until I go past 3.0. That will save me all the high cost testing and hold the money in savings until I really need it. I know that comes with risks. I know of one M/M patient who's M-Spike was low but was at 80+ on the plasma count! However; nobody ever told me life was W/O risk. We need to manage that risk and move ahead...

I get emails from the support group in San Francisco and they offered help with deductibles and co-pays but I don't think I'm there yet. There are patients who couldn't get much needed "treatment" without that help. I don't want to go there and maybe prevent that help from being used for a person who is actively treating this cancer. I know with smoldering myeloma I'm in a strange category and being in this situation doesn't make it any less weird.

Soooooo....I'm keeping a smile on my face and a spring in my step knowing that today is the day the Lord has made and I will rejoice and be glad in it! He will take care of me or call me home... Both are acceptable options!

The body is sick, but thanks to Jesus the soul is alive and well...

Friday, March 5, 2010

Trip to San Francisco & MMRF Seminar

Jenni and I made a day trip to San Francisco. We walked the pier and had a nice time at lunch together. We went to Jack's crab shack near the pier. Don't go there... It was just OK food and the beer I had was watered down :-(. The lunch cost a bloody fortune and wasn't worth it. We then went to Pier 39 and bought some candy for home. Driving to Union Square I got stopped by the SFPD because I can't drive in the city. I didn't get a ticket, just a warning and I'm sure a good laugh by the officer.. City people always get a good chuckle about us rural folk. Then Jenni and I shared a great piece of cheese cake at Cheesecake factory at the top of Macy's.

After that it was time to go to the seminar put on by the MMRF. Several good speakers and 4 topics of interest to M/M patients. I came away with a much better knowledge of how the MM cancer cells work and how they are taking that knowledge and targeting treatments to attack the cells. They went over the new and improved treatments and the future of clinical trials. They also had a speaker on supportive treatments. It was a lot of info but well worth the trip. Jenni just said her head hurt from all the data!

I did come away with a feeling that I was there too soon in my walk with this cancer. They made several mentions of smoldering M/M patients but they stopped before giving any helpful information. I'm getting a little frustrated because I feel SMM patients are the step children of the M/M world. We just wait & wait & wait.... It might be better for me to consider going to this kind of seminar after I need to start treatment. I trust my MM oncologist, Dr. Martin (he presented the clinical trials part of the program), so to wait until I'm in active MM might be a better plan. In their own words, "things are changing at the speed of light". Information gained now might be out of date by the time I'm needing treatment.

I really don't know what to expect & when. Like I've said before I'm not good at waiting, I like to take clear and quick action. However; when "they" talk about smoldering myeloma "they" just always say watch and wait.

We met a great couple setting in front of us. He also has SMM and was diagnosed about the same time as I was. I got his name and contact information and gave him mine. It will be nice having a contact who is in the same stage as I'm in! They have been to some support groups and Jenni and I would like to meet them again at one if we can work it out.

I guess I'm being selfish about all this. The patients with active MM are the ones who need the help more than me. So... in that vein... I'll stop complaining and be glad I'm where I'm at, and the blessing of the time I have before I really need treatment! OK..I'm back to my same old smiling self.....:-)

We left before the question and answer part because we had a long drive ahead of us to get home. Jenni and I had a nice dinner at Chili's and we got home about 11:30pm. That's really late for me as I'm a morning person but we made it OK.

All in all a great day of fun and information and both Jenni and I are glad we went. I would like to thank the MMRF for putting it on.

The body is sick, but thanks to Jesus the soul is alive and well...